Gaining control over the chronic pain. After another 1 week in hospital ( the Royal Children's this time ), Harri is getting control over the chronic pain. The Royal has the only chronic pain management team for pediatrics in Brisbane. They have put us on the right course. Unfortunately while we were in hospital Harri developed pneumonia ( potentially life threatening condition for Harri given his respiratory problems ), but they got it early and he is well on the road to recovery from that and the surgery, from 8 weeks ago.
It is good to see a smile on Harri's face again.