Friday, September 30, 2011

Very exciting build up to next week

Harri is getting very excited about next week. Starting next week Harri will attend a local school, as a part of assessment and preparation for attending Corinda State High School next year. The local school will assist in assessment and support, as we develop an IEP for Harri. We are certain he will be worn out by the end of the week, but it is all about challenging him to achieve his potential.

Regards Matt

Sunday, September 18, 2011

Fun at a free concert.

Harri, his brother Bailey and myself just attended a free concert, as part of the Brisbane Festival. The act was called, Bang, Crash, Tap. A very original act, and connecting well with their audience. We thoroughly enjoyed it. Only found out about it by word of mouth.

Harri really enjoyed it and it has been the most he has laughed in months.

Tuesday, September 13, 2011

Happy Birthday Harri

Well, Harri celebrated his 14th birthday on Saturday, (he is an old hand at this teenager thing). Unfortunately Harri had been feeling unwell towards the end of last week, and it came to a head on saturday, when he was miserable all day. By Monday we had been to the doctors, who had requested a chest x-ray. This all resulted in a trip to the emergency department fearing he was coming down with pneumonia. Fortunately tests showed that he has not developed a pneumonia, but a bout of paraflu #3. So he is still feeling unwell. I have promised to make up his birthday fun next weekend.

He is very impressed with his main present from his Mum and me, an iPad. We have been looking at accessibility apps (applications/programs) for it. We do have to refer to it as an iPod touch, as if we don't, it causes jealousy with his brothers.

We have been increasing the use of the ABR machine again, but unable to get any hours overnight, because Harri still has not settled down into good sleeping patterns since his surgery in May this year. The new supercharger still eludes us as Harri is finding it difficult to maintain a comfortable position for any decent length of time. But the new egg treatment is proving to be our main stay, although positioning myself is difficult and i don't think i am increasing my efficiency all that well.

Thursday, September 1, 2011

Getting upright at last

Although we have had some trials of standing frames, to work out which one suits Harri's needs the best. We have not had one long enough to get into a routine of standing. But we now have a loan of a tilt table from Xavier Children's Support Network. It is not perfect, but it will do for now. I hope to add a photo, as soon as i upload the photos from the camera.

Regards Matt