Saturday, August 31, 2013

More results and changes

We have seen the next lot of specialists this week. The gastro has decided that Harri may improve his weight gain by reducing the anti-acid. Being that Harri in recent months, with dietary changes, has had less incidents of reflux and vomiting. The dietitian has modified Harri diet by increasing the amount of oils/fats and protein. The improvements have been made by reducing the food with gluten and lactose in them as well as fructose and some other foods likely to cause gut/bowel reactions, causing the reflux and gastritis.

We have 2 more weeks before we see our next bunch of specialists.

The signs of progress of improving Harri's comfort are usually seen in participation at school and 10 pin bowling. So i am please to report that Harri today bowled nearly at his best with 2 of his 3 games over average, 41 over and 19 over. Helping his team to a 2 - 1 victory and securing the 6 out of 8 points on offer, putting his team back into the top 10 out of 18 teams. This is good news for Harri leading into the disabled leagues invitational in 2 weeks. This is sort of the state disabled championship, but not officially as teams from throughout Queensland are invited, but most from outlying areas usually save their money for the annual national tournament. But a good result here will make Harri available for selection to represent the state in a team at the nationals.

Thursday, August 29, 2013

important results back from our stay in St Vincent's

We have had a meeting with Dr Harry McConnell, to get the results from our stay in St Vincent's hospital where we had 3 lots of tests done. Although the results were not encouraging, it now gives us some new direction of treatments for a better result for Harri.

We commenced this week a 2 new anti seizure medications with the view to shift Harri from his current medications to the new ones. One of his current medications could be contributing to disturbance of his deep sleep. This in turn could be effecting alertness, mood, pain tolerance as well as metabolism. This could be contributing to Harri's difficulty to gain weight.

We have more specialist appointments this coming week including the Gastroenterologist. So more changes may be in store.

Cheers Matt

Monday, August 19, 2013

Thank you shout out's

I want to take the time to say thank you to a couple of businesses that have helped out in our fundraising drives.

Firstly to Coby Copy at Mt Gravatt Plaza, who supplied photo copying for our mail box drops and posters.

Secondly to Dsignshop on Ipswich Road at Annerly for the decals for the car. The QR scan icon directs people to the blogsite.

Thanks also to all those who sponsored Team Harri's HOPE in the Gold Coast Marathon.

Regards Matt

Sunday, August 4, 2013

Harri enjoys school camp

Harri enjoyed the senior school camp at Camp QLD near Lake Moogerah. Although Harri had a ball his parents were bitting their fingernails, and were pleased to see him on the Friday. I hope to have more photos when we get them from school. But for now i will share the only 1 i have.

Some other photos i wanted to share were of the Team Harri's HOPE at the Gold Coast Marathon. We all had a ball and look forward to next years challenge of the 14Km City2South.