We have had a meeting with Dr Harry McConnell, to get the results from our stay in St Vincent's hospital where we had 3 lots of tests done. Although the results were not encouraging, it now gives us some new direction of treatments for a better result for Harri.
We commenced this week a 2 new anti seizure medications with the view to shift Harri from his current medications to the new ones. One of his current medications could be contributing to disturbance of his deep sleep. This in turn could be effecting alertness, mood, pain tolerance as well as metabolism. This could be contributing to Harri's difficulty to gain weight.
We have more specialist appointments this coming week including the Gastroenterologist. So more changes may be in store.