After a long wait and at times getting uncomfortable in his old chair, Harri's new wheelchair arrived this week. bright and yellow were the choices he made. This chair has a comfortable backrest and gel seat, as well as having the added advantage of a tilt in space. So recent i will have to add the photo in later.
Also arriving this week was the trial of the 2nd eye gaze device. Maybe because we had the previous on or maybe this one is just that little bit easier to use, but Harri is having a ball when he gets the chance. He does get tired quickly though. I will attempt to capture some video of him using the device and post it this week.
Regards Matt
Monday, March 18, 2013
Sunday, March 10, 2013
2nd trial about to begin
Harri has been waiting on the arrival of his 2nd speech generation device with eye gaze module. Following this trial we hope to be in a position to order 1 for Harri to build his communication skills. The next 2 weeks will be very interesting.
We had confirmation from the Siberian Husky breeder that puppies are due to be born around the 19th - 21st of March. This will make it about late May or June that we will bring our puppy home.
It has been raining quite a lot lately, and we have found it difficult to test out the alterations to the all-terrain wheelchair. We have adjusted the seating to make it more comfortable for longer periods of time. Our hope to be able to do the Gold Coast Marathon ( 10km ) event, will depend on being able to get out there and train.
We had confirmation from the Siberian Husky breeder that puppies are due to be born around the 19th - 21st of March. This will make it about late May or June that we will bring our puppy home.
It has been raining quite a lot lately, and we have found it difficult to test out the alterations to the all-terrain wheelchair. We have adjusted the seating to make it more comfortable for longer periods of time. Our hope to be able to do the Gold Coast Marathon ( 10km ) event, will depend on being able to get out there and train.
Thursday, February 28, 2013
More hospital appointments and results
We had confirmation of the results of Harri's gastostomy from last Friday. As we expected there was signs of acid burn and a looseness of his oesophagus at the stomach. It was not severe enough to warrant corrective surgery, but it may be an option further down the track. What was a surprise is some evidence of gastritis lower in his stomach and at the beginning of his intestine. A change of medicine is hoped to correct the problem.
We had a appointment at the RCH today to see rehabilitation specialists. The aim was to come up with a plan to combat Harri's cramping and the associated pain. We discussed some more long term solutions, but the short term plan was to increase the amount and frequency of the Botox injections, as well as increase the amount of sites it is administered to. We should have an indication within 2 weeks if this new plan is going to work.
In combination with the new plan Harri has new AFO's and standing will become an important addition to the potential success of plan to achieve standing transfers.
We had a appointment at the RCH today to see rehabilitation specialists. The aim was to come up with a plan to combat Harri's cramping and the associated pain. We discussed some more long term solutions, but the short term plan was to increase the amount and frequency of the Botox injections, as well as increase the amount of sites it is administered to. We should have an indication within 2 weeks if this new plan is going to work.
In combination with the new plan Harri has new AFO's and standing will become an important addition to the potential success of plan to achieve standing transfers.
Sunday, February 24, 2013
Queensland team bid unsuccessful
Harri had the final roll off for selection in the Cole Cup Qld team this weekend. He bowled courageously but was unsuccessful. He has however qualified for a place as an individual bowler at the national disabled tournament in June, in Canberra, having placed 3rd in the mens A grade at the state titles. We will consider this opportunity before making our discussion.
Saturday, February 23, 2013
Harri's day surgery goes fine
Harri had a day surgery procedure on Friday. The gastrostomy was to investigate the cause of recent vomiting and uncomfortableness. The procedure went quickly and Harri woke well in recovery. While there was some unexplained areas of interest the gastroenterologist will be unable to shed any further details until biopsy results are back later this coming week. There was also the expected signs of gastroesophageal reflux at the base of his oesophagus, so for the time being he will remain on omeprasol.
Wednesday, February 20, 2013
Big weekend for Harri
Harri is recovering from a big weekend, we drove to Sydney on Thursday and Friday to attend the latest ABR clinic on Saturday and Sunday, then returned home on Sunday and Monday. Harri was back at school on Tuesday and has been active in more of his classes as the year clicks into gear.
The report from the ABR clinic was as good as can be expected, we have seen a lot of development in his shoulders and neck control leading towards purposeful weight bearing. There is more visible definition of his spinal column and better division between hip hips and ribs , especially on the right side.
New techniques and apparatus have given hope to more efficiency with the same amount of hours. I am happy with this, as i am a bit disappointed in the amount of hours i can give to ABR exercises as Harri is spending so much time with school and school work.
Harri still has time for his 10pin bowling and other interests. The final roll off for the Cole Cup (QLD) team is this Sunday, good luck Harri. Also i have attached some of Harri's latest art work. He really enjoys making choices and producing the art pieces.
The report from the ABR clinic was as good as can be expected, we have seen a lot of development in his shoulders and neck control leading towards purposeful weight bearing. There is more visible definition of his spinal column and better division between hip hips and ribs , especially on the right side.
New techniques and apparatus have given hope to more efficiency with the same amount of hours. I am happy with this, as i am a bit disappointed in the amount of hours i can give to ABR exercises as Harri is spending so much time with school and school work.
Harri still has time for his 10pin bowling and other interests. The final roll off for the Cole Cup (QLD) team is this Sunday, good luck Harri. Also i have attached some of Harri's latest art work. He really enjoys making choices and producing the art pieces.
Friday, February 8, 2013
Harri in good form
The state selection roll off was on last weekend. Selection is for 3 different teams. A scratch team ( no handicap ), a categorised team ( for bowlers with average scores below 140) and a Cole Cup team.
The scratch team and categorised team have been announced, the cole cup team will be announced in late February.
Harri was in good form and went into the day with an average of 144. He needed to have his bowling action accredited to qualify for selection ( as he is assisted with placing and aiming the ramp and ball). He bowled a morning session of
game 1 160
game 2 151
game 3 138
and an afternoon session of
game 1 177
game 2 159
game 3 149
so an average score for the day of about 155. There will be 1 more bowling day for the Cole Cup team later in February of 1 session ( 3 games). He may need to bowl an average of around 170-175 to make the team.
The scratch team and categorised team have been announced, the cole cup team will be announced in late February.
Harri was in good form and went into the day with an average of 144. He needed to have his bowling action accredited to qualify for selection ( as he is assisted with placing and aiming the ramp and ball). He bowled a morning session of
game 1 160
game 2 151
game 3 138
and an afternoon session of
game 1 177
game 2 159
game 3 149
so an average score for the day of about 155. There will be 1 more bowling day for the Cole Cup team later in February of 1 session ( 3 games). He may need to bowl an average of around 170-175 to make the team.
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