More hospital appointments and results

We had confirmation of the results of Harri's gastostomy from last Friday. As we expected there was signs of acid burn and a looseness of his oesophagus at the stomach. It was not severe enough to warrant corrective surgery, but it may be an option further down the track. What was a surprise is some evidence of gastritis lower in his stomach and at the beginning of his intestine. A change of medicine is hoped to correct the problem.

We had a appointment at the RCH today to see rehabilitation specialists. The aim was to come up with a plan to combat Harri's cramping and the associated pain. We discussed some more long term solutions, but the short term plan was to increase the amount and frequency of the Botox injections, as well as increase the amount of sites it is administered to. We should have an indication within 2 weeks if this new plan is going to work.

In combination with the new plan Harri has new AFO's and standing will become an important addition to the potential success of plan to achieve standing transfers.