Over the last couple of weeks, Harri has had an increase in the dose of his drug trial. For those who are only just joining in on this information. Harri started a experimental (for Australia ) drug trial, in November last year. To the best of our knowledge, Harri is the first pediatric trial case in Australia. There has been some adults involved in the trial, but it is not coordinated. Each patient is seeking advice from the Dr. overseas who has had the most experience with this trial (over 11 years). The use for this drug to treat stroke and brain injury patients, is having amazing results. Not everyone responds to the treatment, and some respond faster than others.
The dose Harri is on, is now starting to near the levels that have had great results in adults. In the last 10 days Harri has been increasing the attempts to communicate. His teachers at school have said that they are now noticing Harri using eye blinking to make choices. At home we have witnessed an increase in the eye contact he makes with us and visitors. We have also noticed an increase in the amount of sounds he makes while trying to communicate, as well as the range of sounds ( higher and lower pitch sounds). It may take several more weeks or months at this level or slightly more, before Harri starts to really benefit from the advantages of the trial. But we approach this year with a real sense of optimism.
Please share this story and link around to other who follow Harri's progress, but may not be currently a follower of the blog.
Regards Matt
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