We have got through another big week of appointments. Neurologist, Orthopedics and Pediatrician. With pathology, x-ray and osteopath thrown in for good measure. The Neurologist gave us the report on the EEG study from about 6 weeks ago. It showed that he is having more abnormal brain waves in his sleep and resulting in seizures. They would like to start him on a different anti-seizure medication because they believe it is effecting his sleep, and there for effecting his day time activities.
The Orthopedics are happy that his hips are not becoming any worse ( sub-luxating ). His arm is all healed. But they are growing concerned about his scoliosis, and have referred Harri to the spinal clinic. The Pediatrician was not greatly concerned about Harri's bout of vomiting blood. He has put it down to gastritis. This should see the end of specialists for at least 3 months.
We are set to commence some Hyperbaric oxygen therapy, starting Monday. We will try to get a good deal done during the school holidays, ( the next 2 weeks). Harri has been practicing with his Jedi Force trainer, and get quite good at it. I am excited about what this will mean for Harri when working with the Epoc system. I have again initiated contact with Emotiv about ordering a unit to pick up in Sydney when we are next there.
I am sure we will get up to lots of action over the holidays and have some photos for you in my next post. Regards Matt
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