A week of tests

Harri is glad to be home after a week of tests. Harri is seeing a new neurologist, who has asked for a series of tests so recommendations for further treatment or treatment changes can be made.

Because the neurologist ( Dr McConnell ) works out of St Vincent's Hospital at Kangaroo Point, Harri was admitted to an adult hospital for the first time. On Monday he was fitted up for a sleep study, Tuesday he was off for a MRI, Tuesday night Harri was fitted up for a 72 hour EEG. Most of the results will take 3 - 4 weeks.

Whilst an inpatient we were visited by every specialist they had to offer, just going over the case looking for anything that may have been missed, and offering some valued advice in several areas.

Harri could not wait until Friday night to come home, have a bath and wash his hair.

This week Harri will be off to school camp Wednesday - Friday, a very nervous few days for Kim and I as this will be the first night that we have left Harri with anybody overnight since his injury in 2001. I am sure Harri is up for it. He seems excited.

Regards Matt

Harri joins in on adventure

We have always been an adventurous family, even back before Harri's injury we were trekking around north western Queensland while living in Mt Isa, visiting central and southern Northern Territory and the Gulf of Carpentaria.

So it is no surprise that Harri was thrilled to tag along with little brother Bailey on a bush walk to explore some local caves on Mt Gravatt. Up goat tracks, down slopes, up hills and across gullies in his all terrain wheelchair.

I thought i would also post a recent photo of Harri enjoying the Liberty Swing on our recent trip to Mackay.

Regards Matt

All ready for GCM fun run

We are all geared up and ready for the Gold Coast Marathon 5.7km event tomorrow. The fundraising is steadily growing and we will get some more donations come in after the event. Presently we are sitting just under half of the total we aimed for.

I hope to capture a short video of finishing the event from the perspective of the front of Harri's jogging chair.

For those who still wish to donate the link is,

Harri's Hope team

Younger brother Bailey is leading the fundraising.


Regards Matt